# LaTeX code for Ethic Changes Part 1

\documentclass[a4paper,11pt]{article}
\usepackage{ulem}
\usepackage{a4wide}
\usepackage[dvipsnames,svgnames]{xcolor}
\usepackage[pdftex]{graphicx}

\usepackage{hyperref}
% commands generated by html2latex

\begin{document}
\begin{tabular}

\subsection{Contents}
\begin{itemize}
\item \hyperlink{2.1_Study_Objectives_and_Design}{12.1 Study Objectives and Design}
\item \hyperlink{5.6_Sound_or_Image_.28other_than_audio-_or_video-taped_interviews.29_or_Material_Created_by_Participants}{35.6 Sound or Image (other than audio- or video-taped interviews) or Material Created by Participants}
\item \hyperlink{6.3_Data_Confidentiality_and_Privacy}{56.3 Data Confidentiality and Privacy}
\item \hyperlink{6.4_Data_Storage.2C_Retention.2C_and_Disposal}{66.4 Data Storage, Retention, and Disposal}
\end{itemize}
\end{tabular}\hypertarget{2.1_Study_Objectives_and_Design}{}

\subsection{2.1 Study Objectives and Design}

Describe ethic procedures with the end of project interviews.
\begin{itemize}
\item  One on one in person interviews
\item  Will they be recorded or transcribed?
\item  Add another questionnaire for the interview.
\item  Add informed consent for the end-of-project interviews.
\end{itemize}

We need to add a project timeline for the participants in the informed consent document.
\begin{itemize}
\item  Workshop/questionnaire, types of data they will be expected to input in the website, and the final interview.
\item  This is to give the participants a complete picture of the entire study.
\end{itemize}

\begin{itemize}
\item  Who will be conducting the interviews?
\item  What is our role as a PI along side Natalie.
\end{itemize}

Will the edited translations or transcriptions be sent to the participants to approve them before they are posted?

If we want to learn the participants??? perception of group sourcing, we need to define it (and indicate this aspect we want to learn).

Examples of each type of questions ??? for the survey, format for online data entry, and interview questions should be included.

In attachment, fix the REB listing to ASL REB\hypertarget{4.4_Informed_Consent_Determination}{}

\subsection{4.4 Informed Consent Determination}

Information about the end of the project interviews.

We state that the participants can choose to remove themselves and their work at any time.
\begin{itemize}
\item  We need to include it in the letter of initial contact and the consent form.
\item  What information can and cannot be withdrawn?
\end{itemize}

Include what exactly will be on the Internet. \hypertarget{5.6_Sound_or_Image_.28other_than_audio-_or_video-taped_interviews.29_or_Material_Created_by_Participants}{}

\subsection{5.6 Sound or Image (other than audio- or video-taped interviews) or Material Created by Participants}

We should have the default for crediting submitted works as anonymous, and only connect the names of the participants to their work if they expressly state.
\begin{itemize}
\item  '\textit{Problem} 'This is contrary to Natalie???s Ethics.
\item  Reason we link their names directly to their work is to give the participants a sense of cultural pride by contributing to the field.
\end{itemize}

\textbf{Problem}: We state that the researchers will look at the work anonymously, but what is to stop them from going on to the site and connecting the dots between author and work.
\begin{itemize}
\item  Or will we know those that choose not to remain anonymous, and not know those who did ??? publishing none of the names
\item  Can readers of articles connect who the author is in the research through our description?
\end{itemize}

Will the participant???s names be connected with the comments, questions and report a problem?\hypertarget{6.2_Data_Identifiers}{}

\subsection{6.2 Data Identifiers}

2.0: When and in what format (orally, through a written questionnaire, etc) will these questions be posed to participants? What is their relevance to your research? Why are they not included in your questionnaire?

4.0: Should we keep the participants names or use coded numbers?\hypertarget{6.3_Data_Confidentiality_and_Privacy}{}

\subsection{6.3 Data Confidentiality and Privacy}

Add information regarding the end of project interviews.

3.0: A confidentiality agreement will be signed at the beginning of volunteer participation.\hypertarget{6.4_Data_Storage.2C_Retention.2C_and_Disposal}{}

\subsection{6.4 Data Storage, Retention, and Disposal}

Question: Is the data going to be transferred from the TAPoR database? If yes, how will that work?

Add to 2.0: The files will be erased after five years.\hypertarget{Questions}{}

\subsection{Questions}

\textbf{Will the edited translations or transcriptions be sent to the participants to approve them before they are posted?}
\begin{itemize}
\item Natalie says no, she doesn't see the point.
\end{itemize}

\textbf{What information can and cannot be withdrawn by the participants?}
\begin{itemize}
\item Natalie said, "They can withdraw all identifying information, that is information about themselves. The text and/or translation. It just becomes anonymous."
\end{itemize}

\textbf{Will the participant???s names be connected with the comments, questions and report a problem?}
\begin{itemize}
\item Natalie said, "I would like that to be at the discretion of the participants, if possible. What we need is to have that information for our own purposes. But this need not be public information unless people want it to be."
\end{itemize}

\textbf{Should we keep the participants names or use coded numbers when we store the data for 5 years?}
\begin{itemize}
\item Natalie said, "My guess would be that coding would be preferred just in case some people do want to withdraw identifying info.
\end{itemize}

\end{document}